First of all, Diane is doing great. Went to the Dr today and he removed the last tube in her body: JP Tube (this was her feeding tube and drain tube). She is left with some small wound repair but really feels a lot better with all tubes gone. The nurse couldn't believe that Diane had a "whipple" (she is so far ahead of the normal whipple patient). Diane walks, climbs stairs, rides in the car, and even has done Costco! She now needs to work on strength and stamina. And I am so impressed with change in her skin color (the redness she has had in her face for 5 yrs. is gone!). I don't know whats next, but I see a very bright future with more strength than shes had for years.
I just want to thank you again for sharing Diane's blog with her. Jeff
Friday, August 29, 2008
Friday, August 22, 2008
Diane wants to thank you:
Happy 40th Birthday, DeAnn - we all love you and are so very proud of you!
Well, I have reached the 4th week since my surgery; and when I read all your comments on the blog I am so filled with emotion - your love and support have been awesome, and I am sure you are all responsible for my meeting and surpassing each & every hurdle along the way. A Giant Thank You doesn't begin to express how much I appreciate and love each and every one of you.
I was in the hospital for 3 weeks and was never left alone. Family and friends were always there to anticipate my needs and be proactive in my care. I can't tell you how much that meant to me. I had so many obstacles and challenges along the way; but, I never had to worry or face them alone. My gratitude is forever.
To my husband Jeff, I know sometimes it was hard, but you were there for me day and night: Making my bed perfectly, and particularly supporting me during those horrible tests - Thank you honey.
To Randy and Lois, how can I possibly thank you enough for all you have done and continue to do. Allowing us to stay in your house and making us feel so at home. Lois for spending that terrible first night out of Cardiac ICU with me. You said before the surgery several times that you would help me get through this; and you have and continue to be there for me at every turn. Lois, is constantly doing laundry, and always cheerfully! Thank you Randy for always making me laugh. We have grown up together and you both have always been there for me and my children.
To Marc and Christine, for treating us to a magical trip to Catalina before the surgery; and have been there every day for three entire weeks after the surgery. Always listening to doctors, anticipating my needs, decorating my hospital room with pictures, balloons, flowers; for updating my I-Pod, even providing books on tape, and most of all for your never-ending support. Your caring, your advice, your stories, and laughter, all taking my mind off my troubles; and filling me in on baby updates, reminding me that the "Grandma" incentive is ever present.
To Jay and Alicia who tried to see me before surgery but weren't able to because their car broke down in Baker (half way here from Las Vegas) and had to be towed home. After surgery they tried again and spent 2 days with me. I so appreciate their love and support. Alicia was always filling my ice water.
One of my best moments in the hospital and one I will never forget was when "all the kids",Jay, Alicia, Marc, Christine, Dana, and Eric were in the room together: I had great pleasure just watching and listening.
To my niece, DeAnn, who actually spent a night at the hospital; and to my niece Dana, who visited often and took care of Katie so Jeff and I could make that wonderful trip to Catalina.
To my cousin Clark, thank you so much for the wonderful visit and gorgeous orchid (complete with the address for board and room when it gets tired)!
To Maggie who spent 2 nights with me and brought brownies for all the nurses. And to JoAnne and Sandi who spent a night with me, and visited often. I know it wasn't easy and I want you to know how much you are all appreciated.
To Diane Cunningham, a friend forever. Words can't express how grateful I am for your constant care and love for our Katie girl. I have missed her every day; but every day, I know the incomparable hands Katie is in. You have been unbelievable to her, you have supported me - you are an amazing person, and very appreciated. My prayers are with you always.
And to all our friends who write, call, pray, light candles, and support us: I am forever grateful. When I think of all the "bullets" I dodged, I know it happened because of all of your prayers and support. All of you are responsible for my swift recovery and being able to leave the hospital on my birthday! Best birthday I ever had, Welcome Home banner, cake and most of all peace and quiet! THANK YOU, THANK YOU ALL!
I have turned a corner! The infection finally seems to be diminishing, I am no longer hooked up to a feeding machine, I take short walks, and I am feeling better day by day.
Jeff is planning to set up our rig at the Newport Dunes on Sept. 2; and hopefully, within about a week, I will be able to join him. Randy and Lois will finally be able to have their house back, and Katie will be coming home soon. Then, Oct. 13, Jeff has his knee replacement surgery and I will become the caregiver! WOW!
Please keep us in your thoughts and prayers. LOVE ALL, FOREVER AND FOREVER, Diane.
Well, I have reached the 4th week since my surgery; and when I read all your comments on the blog I am so filled with emotion - your love and support have been awesome, and I am sure you are all responsible for my meeting and surpassing each & every hurdle along the way. A Giant Thank You doesn't begin to express how much I appreciate and love each and every one of you.
I was in the hospital for 3 weeks and was never left alone. Family and friends were always there to anticipate my needs and be proactive in my care. I can't tell you how much that meant to me. I had so many obstacles and challenges along the way; but, I never had to worry or face them alone. My gratitude is forever.
To my husband Jeff, I know sometimes it was hard, but you were there for me day and night: Making my bed perfectly, and particularly supporting me during those horrible tests - Thank you honey.
To Randy and Lois, how can I possibly thank you enough for all you have done and continue to do. Allowing us to stay in your house and making us feel so at home. Lois for spending that terrible first night out of Cardiac ICU with me. You said before the surgery several times that you would help me get through this; and you have and continue to be there for me at every turn. Lois, is constantly doing laundry, and always cheerfully! Thank you Randy for always making me laugh. We have grown up together and you both have always been there for me and my children.
To Marc and Christine, for treating us to a magical trip to Catalina before the surgery; and have been there every day for three entire weeks after the surgery. Always listening to doctors, anticipating my needs, decorating my hospital room with pictures, balloons, flowers; for updating my I-Pod, even providing books on tape, and most of all for your never-ending support. Your caring, your advice, your stories, and laughter, all taking my mind off my troubles; and filling me in on baby updates, reminding me that the "Grandma" incentive is ever present.
To Jay and Alicia who tried to see me before surgery but weren't able to because their car broke down in Baker (half way here from Las Vegas) and had to be towed home. After surgery they tried again and spent 2 days with me. I so appreciate their love and support. Alicia was always filling my ice water.
One of my best moments in the hospital and one I will never forget was when "all the kids",Jay, Alicia, Marc, Christine, Dana, and Eric were in the room together: I had great pleasure just watching and listening.
To my niece, DeAnn, who actually spent a night at the hospital; and to my niece Dana, who visited often and took care of Katie so Jeff and I could make that wonderful trip to Catalina.
To my cousin Clark, thank you so much for the wonderful visit and gorgeous orchid (complete with the address for board and room when it gets tired)!
To Maggie who spent 2 nights with me and brought brownies for all the nurses. And to JoAnne and Sandi who spent a night with me, and visited often. I know it wasn't easy and I want you to know how much you are all appreciated.
To Diane Cunningham, a friend forever. Words can't express how grateful I am for your constant care and love for our Katie girl. I have missed her every day; but every day, I know the incomparable hands Katie is in. You have been unbelievable to her, you have supported me - you are an amazing person, and very appreciated. My prayers are with you always.
And to all our friends who write, call, pray, light candles, and support us: I am forever grateful. When I think of all the "bullets" I dodged, I know it happened because of all of your prayers and support. All of you are responsible for my swift recovery and being able to leave the hospital on my birthday! Best birthday I ever had, Welcome Home banner, cake and most of all peace and quiet! THANK YOU, THANK YOU ALL!
I have turned a corner! The infection finally seems to be diminishing, I am no longer hooked up to a feeding machine, I take short walks, and I am feeling better day by day.
Jeff is planning to set up our rig at the Newport Dunes on Sept. 2; and hopefully, within about a week, I will be able to join him. Randy and Lois will finally be able to have their house back, and Katie will be coming home soon. Then, Oct. 13, Jeff has his knee replacement surgery and I will become the caregiver! WOW!
Please keep us in your thoughts and prayers. LOVE ALL, FOREVER AND FOREVER, Diane.
Friday, August 15, 2008
We're Home on 8/12!
So what has Katie been doing while Diane has been the hospital? Photo Ops: She's gone "Hollywood!" Visiting Saks, Chanel, Prada, Armani, Yves Saint Laurent, St. John, Neimann Marcus, etc., and we have pics to prove all of it! Huge "kudos" to Diane Cunningham for taking care of Katie 24-7 (feeding, walking, poo detail, pills, bath, groomer, vet, dog visits, people visits, etc.), and this includes a complete change in Diane C's lifestyle to accomplish all of this. This was so comforting to Diane S. What would we have done without you? Thank You!!!!!!And for Diane, it was only yesterday (8/10) that due to a high liver count (meaning her liver wasn't draining properly), surgery was scheduled for Diane to have another tube to be placed between the ribs, through the liver and into the intestine, and to remain there for 6 weeks. She woke up scared, was given a blood test, and 3 hours later her test showed the liver count went down and surgery was canceled. Her Dr. came in, ordered an ultra sound to confirm proper liver function, and said that if successful, she would be going home on 8/12. 8/12 AM, the Dr. told Diane the good news. The entire 6th floor came in to say good-by and wished Diane a Happy Birthday.
Today, 8/12, Diane is sooo happy to be home (20 days!). Dana's children had made a large banner strung across the outside balcony welcoming Diane home (brought tears to Diane); and inside, was a birthday cake, balloons, flowers, etc. and a lovely room for her to come home to (thanks Randy & Lois) (ie: 8/12 is Diane's birthday!). After entering the house, she said that she could not have made it without all your love and support.
She still has 50% night feeding through a feeding tube (eats normal foods otherwise) and sleeps with a stomach drain tube: All tubes are disconnected daytime so she becomes quite mobile. A nurse comes 1/day now. The Dr. says that Diane's whipple couldn't have been better: She missed many procedures (post surgery) that often occur. She looks great! Pain is managed and she is in good hands. A lot to go, but the worst (operation) and best (no cancer) is over.
A special thanks to Marc & Christine for being at Diane's bedside every day, for helping me update the blog, and for always listening to Diane's needs (flowers, balloons, food, phone calls, clothes, love, i-Pods, books by CD, music, etc. etc.).
Tuesday, August 12, 2008
Outta There :-)!
Hi all,
Looks like yesterday's rumors were true, and mom is finally leaving the hospital today. Even better news is that the pathology results came back on the cyst, and they are only "pre-cancer". So NO plans for Chemo to follow at this point. Still a tough recovery from such a difficult surgery, but the prognosis continues to look as good as could have been hoped for going into all this. Hopefully the next blog will be from mom and dad with the release from the hospital. In the meantime, thanks for following all this and again thanks for all your thoughts and prayers from the bottom of our hearts!
Marc
Looks like yesterday's rumors were true, and mom is finally leaving the hospital today. Even better news is that the pathology results came back on the cyst, and they are only "pre-cancer". So NO plans for Chemo to follow at this point. Still a tough recovery from such a difficult surgery, but the prognosis continues to look as good as could have been hoped for going into all this. Hopefully the next blog will be from mom and dad with the release from the hospital. In the meantime, thanks for following all this and again thanks for all your thoughts and prayers from the bottom of our hearts!
Marc
Monday, August 11, 2008
Good News!
Hi all,
So keep doing whatever you were doing yesterday. The counts on the concern for the liver have come way down, and they are ruling out the procedure they had scheduled today. They are doing 1 more ultrasound later today just to check, but the expectation as of this am is to release her tomorrow (nice birthday present for her!). So more later, but a terrific morning for her so far.
Love,
Marc
So keep doing whatever you were doing yesterday. The counts on the concern for the liver have come way down, and they are ruling out the procedure they had scheduled today. They are doing 1 more ultrasound later today just to check, but the expectation as of this am is to release her tomorrow (nice birthday present for her!). So more later, but a terrific morning for her so far.
Love,
Marc
Saturday, August 9, 2008
8/9 Move home is delayed
Hi all,
Looks like the early report on going home Sunday was a bit premature. We got some news from the doctor today that they are not happy with the Liver counts in the latest blood tests. This is not a cause for serious concern at this point, but they are going to keep her for some more tests on Monday. We do not know the details yet of that test, but should know more tomorrow. Her nausea has also become a little more difficult as they find the right mix of solid food, medicine and care. So overall a long day for mom, but she continues to push through it all with the same positive attitude. We hope for some rest for her tonight, and a better day tomorrow. The doctor still refers to her as his "model Whipple Patient", so we are glad for his assessment for how she is doing. So the "roller-coaster ride" continues, and we will update you all as we know more tomorrow. In the meantime, thanks for your continued kind thoughts and prayers!
Love,
Marc
Looks like the early report on going home Sunday was a bit premature. We got some news from the doctor today that they are not happy with the Liver counts in the latest blood tests. This is not a cause for serious concern at this point, but they are going to keep her for some more tests on Monday. We do not know the details yet of that test, but should know more tomorrow. Her nausea has also become a little more difficult as they find the right mix of solid food, medicine and care. So overall a long day for mom, but she continues to push through it all with the same positive attitude. We hope for some rest for her tonight, and a better day tomorrow. The doctor still refers to her as his "model Whipple Patient", so we are glad for his assessment for how she is doing. So the "roller-coaster ride" continues, and we will update you all as we know more tomorrow. In the meantime, thanks for your continued kind thoughts and prayers!
Love,
Marc
Friday, August 8, 2008
8/8 Update and Thank You's
Hi all. It has obviously been a few days since the last post, and all continues to go well overall. My Dad asked that I update the blog for him as he has kept very busy with all the time at the hospital etc. No news back yet on the final biopsy results, but as Dad said in his previous blog, the preliminaries look clear. Also the Upper GI came back and everything appears to be functioning extremely well (big relief for all of us). They have even started solid foods the other day again for her. The only significant "problem" issue we are dealing with is she has a persistent infection in her chest that they are working to clear. The doctor is confident still though that healing is progressing, and it should clear up with the proper care and cleaning (although I can tell you that the care/cleaning part is very painful!). The original plan for aftercare of the surgery was 2 weeks in the hospital, and then another 2 weeks in a nursing care facility before going home. Due in large part to this infection, they have kept her in the hospital for a few more days (the rumor is she may be released from there on Sunday). The good news to all this is that we now believe we will be able to take mom straight home and avoid the nursing home altogether which makes us all very happy. So overall, spirits remain high, progress continues to be made, and the prognosis continues to be excellent. Just a long road still to go which we all knew was there from the beginning.
I did want to take this chance for a few "thank you's" from me for all the help and support my mom and dad have received:
1. To the "night crew" that have all given my dad a break to get some rest at home - Lois (for that first lllooonnnggg night and seems to get all the tough nights after that), Maggie, DeAnn, Jo Anne, and Sandi.
2. To all the visitors: Jay, Alicia, Randy, Eric, Clark (the Orchid is beautiful btw), Dana, Diane (and bringing a very happy puppy named Katie with you), Sandi, DeAnn, Jo Anne, Gene, Sandy (also for joining the surgery day vigil at the hospital, and my mom loves the slippers!), Devin, Jim and Glenna (ok so not in person, but your daily calls sure felt like you were there!) and anyone else that may have (or will be) come(ing) while I was(/am) not there. Your visits really help lift my mom's spirits, keep the nursing staff on their toes, and help the time go by for all.
3. For the many blog comments, gifts, cards and pictures: Bill and Mara (your pics of Katie put one of the biggest smiles on my mom's face while she was there, and you may recognize the latest pic on this blog too!), Billy and Jessie (my mom loved your "flower pot" card), Kurt and Evey (taking the time with all you have on your plate has really been special to my mom).
4. Diane for taking care of mom's little girl and giving Katie the royal treatment. From shopping sprees to the finest malls and stores complete with papparazzi, to allowing her to select her own food, to lavish trips to the "beauty Parlor", exotic get-aways to Santa Barbara, and just taking such great care of her. It has been such a huge lift of this burden from my mom knowing that you are taking such great care of her!
5. To all the Tahoe friends, I know she has really appreciated all calls and concern so much.
6. To my wife Christine (or as my mom like to point out to EVERYONE, her pregnant daughter-in-law :-)), I could not have gotten through all this without your love and support. Thank you so much for everything you have done (and believe me, it's a long list!).
7. To my dad who we like to tease about not spending enough time at the hospital -- you have been amazing to mom through all of this, and are will always be the one she looks to for support when she needs it most. Now back to the "world's smallest violin" :-)!
8. To everyone reading this blog -- we are all a bit tired around here, so please forgive any omissions I may have made here in this quick list and know that we appreciate all the kind acts, thoughts and prayers.
Until the next blog, my love and thanks to all!
Marc
I did want to take this chance for a few "thank you's" from me for all the help and support my mom and dad have received:
1. To the "night crew" that have all given my dad a break to get some rest at home - Lois (for that first lllooonnnggg night and seems to get all the tough nights after that), Maggie, DeAnn, Jo Anne, and Sandi.
2. To all the visitors: Jay, Alicia, Randy, Eric, Clark (the Orchid is beautiful btw), Dana, Diane (and bringing a very happy puppy named Katie with you), Sandi, DeAnn, Jo Anne, Gene, Sandy (also for joining the surgery day vigil at the hospital, and my mom loves the slippers!), Devin, Jim and Glenna (ok so not in person, but your daily calls sure felt like you were there!) and anyone else that may have (or will be) come(ing) while I was(/am) not there. Your visits really help lift my mom's spirits, keep the nursing staff on their toes, and help the time go by for all.
3. For the many blog comments, gifts, cards and pictures: Bill and Mara (your pics of Katie put one of the biggest smiles on my mom's face while she was there, and you may recognize the latest pic on this blog too!), Billy and Jessie (my mom loved your "flower pot" card), Kurt and Evey (taking the time with all you have on your plate has really been special to my mom).
4. Diane for taking care of mom's little girl and giving Katie the royal treatment. From shopping sprees to the finest malls and stores complete with papparazzi, to allowing her to select her own food, to lavish trips to the "beauty Parlor", exotic get-aways to Santa Barbara, and just taking such great care of her. It has been such a huge lift of this burden from my mom knowing that you are taking such great care of her!
5. To all the Tahoe friends, I know she has really appreciated all calls and concern so much.
6. To my wife Christine (or as my mom like to point out to EVERYONE, her pregnant daughter-in-law :-)), I could not have gotten through all this without your love and support. Thank you so much for everything you have done (and believe me, it's a long list!).
7. To my dad who we like to tease about not spending enough time at the hospital -- you have been amazing to mom through all of this, and are will always be the one she looks to for support when she needs it most. Now back to the "world's smallest violin" :-)!
8. To everyone reading this blog -- we are all a bit tired around here, so please forgive any omissions I may have made here in this quick list and know that we appreciate all the kind acts, thoughts and prayers.
Until the next blog, my love and thanks to all!
Marc
Sunday, August 3, 2008
8/3 Update (11 days)
Hi everyone. Everything is still going fine. Diane continues to be in ICU and we are with her 24-7. Stitches out on 8/2 with some seepage; otherwise, OK. Upper GI scheduled for 8/4 to see if fluids are passing through stomach: If not, in a couple of days they will perform an endoscopy with a balloon to dilate food passage orifice. Then we begin the difficult part of retraining the stomach (an unpleasant trip through nausea). She may be discharged or sent to step-down facility at the end of next week (approx the 10th). Diane is strong and you would never know that she has just survived a huge surgery. Great spirits and welcomes your calls.
Meanwhile, while Diane is recovering, her favorite person (Katie) is being shown the finer aspects of life as Diane Cunningham is showing her bloomingdales, Sachs 5th Ave., Neeman Marcus, etc., and has pictures to follow that I know you all will enjoy (once I figure out how to import them to the blog). Today, Katie is having her hair done and then will spend the evening at the yacht club with her new friends. This is only a brief sampling of how Katie's days are going. However, she still finds time to visit "mom" (ie: Our patient, Diane) regularly
Most important, just got news that the pancreas culture appears "BENIGN." More later, Jeff.
Meanwhile, while Diane is recovering, her favorite person (Katie) is being shown the finer aspects of life as Diane Cunningham is showing her bloomingdales, Sachs 5th Ave., Neeman Marcus, etc., and has pictures to follow that I know you all will enjoy (once I figure out how to import them to the blog). Today, Katie is having her hair done and then will spend the evening at the yacht club with her new friends. This is only a brief sampling of how Katie's days are going. However, she still finds time to visit "mom" (ie: Our patient, Diane) regularly
Most important, just got news that the pancreas culture appears "BENIGN." More later, Jeff.
Wednesday, July 30, 2008
7/30: Calls &/or Visitation OK
949-764-6628 or 6th floor room 028 of west wing: Park in the large parking structure, then enter through womans pavilion; turn right @ registration desk and go to the end of the long hall and turn right; continue ahead to the elevators and go to the 6th floor; then turn right to end of hall and you are there.
Endoscopy turned out to be an Upper GI. Due to swelling in the surgery area, they were unable to complete the procedure. This effort was real hard on Diane but must be repeated at a future date. On the good side, her stamina is improving on a daily basis and I believe the next effort will be successful. The Doctor was in today and really liked how well Diane was doing. She had her 1st shower today (sponge baths just don't get it).
Diane is having some good days right now but that will be short lived when they begin to retrain her stomach by clamping her drain line: Fluid will build up in her stomach causing nausea and this will go on for months.
The bottom line is she now has a life to live at the end of this event. I will continue to update the blog, but for now the crisis is over and thank all of you profusely. Jeff
Endoscopy turned out to be an Upper GI. Due to swelling in the surgery area, they were unable to complete the procedure. This effort was real hard on Diane but must be repeated at a future date. On the good side, her stamina is improving on a daily basis and I believe the next effort will be successful. The Doctor was in today and really liked how well Diane was doing. She had her 1st shower today (sponge baths just don't get it).
Diane is having some good days right now but that will be short lived when they begin to retrain her stomach by clamping her drain line: Fluid will build up in her stomach causing nausea and this will go on for months.
The bottom line is she now has a life to live at the end of this event. I will continue to update the blog, but for now the crisis is over and thank all of you profusely. Jeff
Sunday, July 27, 2008
4 Days After Surgery
Sunday the 27th, 11:00 PM and I just got home from the hospital, tired but relieved that when I am not there, someone else is (tonight DeAnn Sarver is staying with Diane): Please don't feel left out if your not physically with Diane because she couldn't have made it without your comments, best wishes, and prayers.
On the 25th, Diane looked like the "pillsbury doe boy" due to fluid build-up from surgery. She also had an allergic reaction (we think to sulfa) which manifested in swelling of the head area, including throat obstruction which brought the house down: Allot of excitement in that room! They arrested the reaction and gave her diaretics to reduce the swelling. On the 26th, she had another small reaction but otherwise you could see great improvement. And today, 27th, you would never know anything had happened: She looks fabulous, pain free (still on pain meds), talking normal, no swelling, no complications, and all the children (35 yrs old and up) came to see her (9 people)......they couldn't believe how super she looked (Lucky we have a huge corner suite to accommodate everyone). It was a brief visit and Diane liked seeing all.
Physical Therapy (PT) is started as Diane has very little energy and weak hands. Today she did walk down the hall (with breaks): She is very proud of herself! Her nurse Neumanja (a big strong man) says to Diane "Shall We Dance" as he gets her out of bed and standing for PT. Diane probably isn't at her best as a dance partner: She has 3 tubes entering her belly (one feeding, others for draining stomach and belly), one in her neck for administering pain meds, a catheter, etc. and most have collection bags attached and her clothes definitely are not "Lance."
But all good things must come to an end. Tomorrow, they will put her out to perform an endoscopy down her throat with CT scan to see if the stitches and surgery are holding. Then, they will close off her drain line to her stomach to retrain her digestive system (they will slowly introduce food orally). This means more PT and 3 months of Nausea! Bad at first then a turn for the better after 2 months. The healing process now begins.
The good news is the Doctor says her surgery was textbook and one of the easiest procedures he has done. He says Diane's recovery is right on target and very successful. Diane is very lucky because this surgery procedure has only been available over the past 5 years.
Visitation is still discouraged until she gets her strength and we see where the next set of circumstances takes us. She is at Hoag Hospital on the 6th floor of East Wing room 028 (I think). We will answer her phone (949) 764-6628, but she isn't strong enough to personally take your call: We will relay message.
Thanks All for visiting the blog. See you on the next blog update. Jeff.
On the 25th, Diane looked like the "pillsbury doe boy" due to fluid build-up from surgery. She also had an allergic reaction (we think to sulfa) which manifested in swelling of the head area, including throat obstruction which brought the house down: Allot of excitement in that room! They arrested the reaction and gave her diaretics to reduce the swelling. On the 26th, she had another small reaction but otherwise you could see great improvement. And today, 27th, you would never know anything had happened: She looks fabulous, pain free (still on pain meds), talking normal, no swelling, no complications, and all the children (35 yrs old and up) came to see her (9 people)......they couldn't believe how super she looked (Lucky we have a huge corner suite to accommodate everyone). It was a brief visit and Diane liked seeing all.
Physical Therapy (PT) is started as Diane has very little energy and weak hands. Today she did walk down the hall (with breaks): She is very proud of herself! Her nurse Neumanja (a big strong man) says to Diane "Shall We Dance" as he gets her out of bed and standing for PT. Diane probably isn't at her best as a dance partner: She has 3 tubes entering her belly (one feeding, others for draining stomach and belly), one in her neck for administering pain meds, a catheter, etc. and most have collection bags attached and her clothes definitely are not "Lance."
But all good things must come to an end. Tomorrow, they will put her out to perform an endoscopy down her throat with CT scan to see if the stitches and surgery are holding. Then, they will close off her drain line to her stomach to retrain her digestive system (they will slowly introduce food orally). This means more PT and 3 months of Nausea! Bad at first then a turn for the better after 2 months. The healing process now begins.
The good news is the Doctor says her surgery was textbook and one of the easiest procedures he has done. He says Diane's recovery is right on target and very successful. Diane is very lucky because this surgery procedure has only been available over the past 5 years.
Visitation is still discouraged until she gets her strength and we see where the next set of circumstances takes us. She is at Hoag Hospital on the 6th floor of East Wing room 028 (I think). We will answer her phone (949) 764-6628, but she isn't strong enough to personally take your call: We will relay message.
Thanks All for visiting the blog. See you on the next blog update. Jeff.
Thursday, July 24, 2008
How to leave a comment on this blog
Hi all. I can only echo my dad's comments on what a great success the surgery was, and how strong my mom was going through such a difficult procedure. When you are in the highest level of care area at Hoag (with the most difficult cases), and the doc's and nurse's are still commenting on what a huge procedure it was and how well she was handling it, I can only admire her courage and strength. Of course all she wanted to know when I finally got to see her, was how we were all doing with having our tough job of waiting in the waiting area to be able to see her.
I have been getting questions on how to post a comment easily on this blog, so I thought I would put this up for everyone's convenience. Step 1: Click where it says "# comments" below the latest posting (ie at the bottom of what my dad wrote on his "Surgery Done!" post. Step 2: scroll down to the bottom of the comments others have left, and you will see a box with "Leave Your Comment" above it. Then type in whatever you wish in this box. Step 3: Below the box you just typed in, you will see selections with the title "Choose an identity" above it. The easiest thing here to select is "anonymous" (just remember to put your name in the box above after you write your comment). Step 4: Finally simply click on "Publish your comment" (in the orange box). That's it -- an if you have any questions, you can always email me at msarver@tamco.com.
Lastly I wanted to thank everyone for the overwhelming number of thoughts and prayers for my mom. Phones have been ringing off the hook, and on behalf of all our family we appreciate it more than you know! This blog is a great place to share your thoughts, and I know my mom in particular loves the comments, so please keep 'em coming. I'm sure she has some challenging days ahead with such a complex surgery, but as the doctor's tell us, there is no replacing the love and support of family and friends with any medicine. So thanks to you all very much!
I have been getting questions on how to post a comment easily on this blog, so I thought I would put this up for everyone's convenience. Step 1: Click where it says "# comments" below the latest posting (ie at the bottom of what my dad wrote on his "Surgery Done!" post. Step 2: scroll down to the bottom of the comments others have left, and you will see a box with "Leave Your Comment" above it. Then type in whatever you wish in this box. Step 3: Below the box you just typed in, you will see selections with the title "Choose an identity" above it. The easiest thing here to select is "anonymous" (just remember to put your name in the box above after you write your comment). Step 4: Finally simply click on "Publish your comment" (in the orange box). That's it -- an if you have any questions, you can always email me at msarver@tamco.com.
Lastly I wanted to thank everyone for the overwhelming number of thoughts and prayers for my mom. Phones have been ringing off the hook, and on behalf of all our family we appreciate it more than you know! This blog is a great place to share your thoughts, and I know my mom in particular loves the comments, so please keep 'em coming. I'm sure she has some challenging days ahead with such a complex surgery, but as the doctor's tell us, there is no replacing the love and support of family and friends with any medicine. So thanks to you all very much!
Wednesday, July 23, 2008
Surgery Done!
Yes, Diane got the best news possible: Bottom line, NO CANCER & big chance of NO DIABETES. After 6 hours of surgery and 2 1/2 hours in recovery, going in as a perfect body and coming out as a fillet, it really doesn't matter. The fact that Diane survived the surgery and will live to be a grandmother is enough to justify this surgery.
All this and the Dr. found only one pre-cancerous cyst (biopsy will confirm diagnosis) and a very healthy pancreas otherwise: Diane asks, "Why did we complete the surgery if there is no cancer?" The answer is that because she has a family history of pancreatic cancer and she has a pre-cancerous cyst, it was only a matter of time before Diane would become cancerous (cancer of the pancreas is a 1 to 5 year death sentence): Now she can live long healthy life and free of this anxiety.
Today, her chief complaint is severe belly pain: Well if someone laid an axe down your belly, I think you would hurt also! But she is a trouper and will get through it. She is in an intensive care cardiac care unit for about 2 days for the purpose of managing her pain, blood-sugar, nutrition, and general recovery; afterwhich, she will be transferred to her own room where she will be able to receive visits. When I find out what room/floor she will be in, I will post it and encourage you to visit: Visitation is 24/7 except for evening and morning hours between 7 & 8. Diane is looking forward to thanking all of you for your love and encouragement.
Thanks from both of us, Jeff & Diane.
PS: Next blog on 7/25 will update and confirm her surgery outcome, her post status, and visitation details.
All this and the Dr. found only one pre-cancerous cyst (biopsy will confirm diagnosis) and a very healthy pancreas otherwise: Diane asks, "Why did we complete the surgery if there is no cancer?" The answer is that because she has a family history of pancreatic cancer and she has a pre-cancerous cyst, it was only a matter of time before Diane would become cancerous (cancer of the pancreas is a 1 to 5 year death sentence): Now she can live long healthy life and free of this anxiety.
Today, her chief complaint is severe belly pain: Well if someone laid an axe down your belly, I think you would hurt also! But she is a trouper and will get through it. She is in an intensive care cardiac care unit for about 2 days for the purpose of managing her pain, blood-sugar, nutrition, and general recovery; afterwhich, she will be transferred to her own room where she will be able to receive visits. When I find out what room/floor she will be in, I will post it and encourage you to visit: Visitation is 24/7 except for evening and morning hours between 7 & 8. Diane is looking forward to thanking all of you for your love and encouragement.
Thanks from both of us, Jeff & Diane.
PS: Next blog on 7/25 will update and confirm her surgery outcome, her post status, and visitation details.
Tuesday, July 22, 2008
Shortcut to Leaving Message on Blog
Many have indicated that working with the blog is difficult. We have found that if you go on as "anonymous," you avoid the confusion (we know who sent the message by your name at the bottom of the blog). I will update the blog on the morning after the operation, 24th (tomorrow). Any questions, call me. Sincerely, Jeff.
PS: Diane has found great comfort in your support. It makes this process easier. Thanks again.
PS: Diane has found great comfort in your support. It makes this process easier. Thanks again.
Friday, July 18, 2008
Pre-OP Info
Surgery scheduled 7/23 at Hoag: 8:30 AM, be there @ 6:30. The doctor said that Diane's surgery is the 2nd most difficult surgery to perform, with liver transplant being no. 1. She will loose part of her stomach, most of her pancreas, a portion of her small intestine, and all of her gall bladder. We pray there is no cancer. We hope that she will not become a diabetic. Diane has a lot ahead of her: No food after 7/21, pre-op preps 7/22, a 6 to 14 hour op on 7/23, then eating (or lack of) will become a whole new lifestyle. She is expected to lose weight in this process, but doesn't advocate this method. After 4 weeks, the nausea and pain should begin to subside, she will become a better eater, and is expected to return home. In 6 weeks she will hopefully "turn the corner", and in 3 months, she will be able to resume normal activity. She will have follow-up screening for the rest of her life. Her anxiety level is very high; but so are her spirits. My hat's off to her for her bravery: I really admire her. If you need me, I will be by her bedside. Jeff
Special Thanks
To Randy & Lois Sarver for providing a "home base" including the daily hugs and moral support. Special thanks for all the work they did in moving things around for our comfort including our own computer room and TIVO. They even gave me a garage that I immediately made my own: I think Lois would like to take this donation back as she shakes her head and says "its growing!" And not to mention the elevator that opens into our bedroom so Randy can keep Diane on her toes.
To Marc and Christine for daily communication and support, plus providing special occasions that enable Diane to go into the hospital and reminisce (ie: Dream of the good times). A few of these recent memories include 1) the announcement of their pregnancy 2) all expense trip to Avalon, Catalina Island where Diane and I first met (including helicopter transportation, luxury private condo on the beach with golf cart, and fine dining for 3 days).
To Diane Cunningham, a new friend who understands even that which we don't know because she is a kidney transplant recipient. She is a walking medical resource and most importantly, she loves Katie: She recently lost her golden retriever a trained "k-9 Good Citizen", and has made it possible for Katie to possibly visit Diane in the hospital. In addition to that, she has offered to help take care of Katie as needed to allow me time for those long visits to the hospital (a giant weight off our shoulders).
To Dana, Eric, Nathan, Betsy and Gracie, for taking such great care of Katie so we could take such a memorable trip to Catalina.
To all our family and friends for their visits, support and prayers. So many have offered to help and I'm sorry we can't mention everybody, but Diane goes into the hospital buoyed by every one's attention and love. Please make use of Diane's blog so all can share the common bond we have with Diane.
Words can't express what your support means to us. Thank You from the bottom of our hearts.
Love, Jeff and Diane
To Marc and Christine for daily communication and support, plus providing special occasions that enable Diane to go into the hospital and reminisce (ie: Dream of the good times). A few of these recent memories include 1) the announcement of their pregnancy 2) all expense trip to Avalon, Catalina Island where Diane and I first met (including helicopter transportation, luxury private condo on the beach with golf cart, and fine dining for 3 days).
To Diane Cunningham, a new friend who understands even that which we don't know because she is a kidney transplant recipient. She is a walking medical resource and most importantly, she loves Katie: She recently lost her golden retriever a trained "k-9 Good Citizen", and has made it possible for Katie to possibly visit Diane in the hospital. In addition to that, she has offered to help take care of Katie as needed to allow me time for those long visits to the hospital (a giant weight off our shoulders).
To Dana, Eric, Nathan, Betsy and Gracie, for taking such great care of Katie so we could take such a memorable trip to Catalina.
To all our family and friends for their visits, support and prayers. So many have offered to help and I'm sorry we can't mention everybody, but Diane goes into the hospital buoyed by every one's attention and love. Please make use of Diane's blog so all can share the common bond we have with Diane.
Words can't express what your support means to us. Thank You from the bottom of our hearts.
Love, Jeff and Diane
Monday, July 7, 2008
Surgery Scheduled for 7/23/08
When we arrived at the hospital today (7/7/08) to meet with our surgeon for the first time, the hospital administrator happened to overhear us trying to figure out where to go. Headed in our direction, she offered to escort us personally. In route, she was telling us all about Dr. Imagawa (head of the pancreas unit and our new doctor), including his education, background, experience in the field of pancreatic surgery, his team, and himself personally as a concerned and conscientious person. By the time we got to the reception area, she introduced us to the receptionist as VIP clients. The best part was the level of confidence we gained in our new doctor: And she is absolutely correct.
Even though Diane has a pre-cancer diagnosis, it will eventually become cancer; therefore, the only alternative is surgery (whipple procedure). This is a very serious and extensive surgery (about 6 to 8 hours) and she will be hospitalized for 4 weeks (2 in the hospital, and 2 in a outpatient nursing facility). She will be able to walk Katie in about 6 weeks from the surgery.
There is a 70 to 80 percent chance she will not become diabetic, and assuming they get all the pre-cancer cells, she will be 90% cancer free.
Surgery is scheduled for July 23rd. Diane's doing very well, considering. Diane gives her love to all and you keep good thoughts. Jeff
Even though Diane has a pre-cancer diagnosis, it will eventually become cancer; therefore, the only alternative is surgery (whipple procedure). This is a very serious and extensive surgery (about 6 to 8 hours) and she will be hospitalized for 4 weeks (2 in the hospital, and 2 in a outpatient nursing facility). She will be able to walk Katie in about 6 weeks from the surgery.
There is a 70 to 80 percent chance she will not become diabetic, and assuming they get all the pre-cancer cells, she will be 90% cancer free.
Surgery is scheduled for July 23rd. Diane's doing very well, considering. Diane gives her love to all and you keep good thoughts. Jeff
Wednesday, July 2, 2008
Thanks to our friends and family
First of all, Diane and I want to thank our sons, family and friends for your love and caring; and a special thanks to Marc for setting up this Blog to keep you informed on Diane's latest condition. Please feel free to express your comments and concerns on this site.
On Monday, 7/9, we will meet with a top notch pancreas surgeon who will discuss our options. We will keep you updated, thanks for your love and support.
On Monday, 7/9, we will meet with a top notch pancreas surgeon who will discuss our options. We will keep you updated, thanks for your love and support.
Tuesday, July 1, 2008
Blog to go live soon!
Hi all,
So my mom and dad have decided to go forward with this blog. Look for more updates coming your way soon. If anyone needs/wants to reach me, my email is msarver@tamco.com.
Thanks,
Marc
So my mom and dad have decided to go forward with this blog. Look for more updates coming your way soon. If anyone needs/wants to reach me, my email is msarver@tamco.com.
Thanks,
Marc
Sunday, June 29, 2008
Hello Friends and Family
Hi all,
If you are on this blog, then you already are aware that Cysts have been found on my mom's pancreas. We are still seeing specialists in this area, and do not have a clear diagnosis or prognosis as of yet. So far they have called the levels from the Cysts "pre-cancerous", which means there is some malignancy, but it is also in an earlier stage of cancer. The latest is that my mom is being scheduled to have a specialist/surgeon review her case for possible surgery on the pancreas. If you would like more detailed explanation of what is out there on this, I have found some good info at http://www.medicinenet.com/pancreatic_cancer/article.htm. This blog is something I really wanted to start for my mom so she can keep you all updated more easily on a central area of communication. So I am keeping this first blog fairly general so my mom can fill in the rest. Just let me say that I know she really appreciates all your thoughts and prayers while this is all sorted out. So feel free to forward this to anyone you want, and stay tuned for more detailed updates. Also feel free to enter the site and use it for any questions or comments. Thanks for all your love and support!
Love, Marc
If you are on this blog, then you already are aware that Cysts have been found on my mom's pancreas. We are still seeing specialists in this area, and do not have a clear diagnosis or prognosis as of yet. So far they have called the levels from the Cysts "pre-cancerous", which means there is some malignancy, but it is also in an earlier stage of cancer. The latest is that my mom is being scheduled to have a specialist/surgeon review her case for possible surgery on the pancreas. If you would like more detailed explanation of what is out there on this, I have found some good info at http://www.medicinenet.com/pancreatic_cancer/article.htm. This blog is something I really wanted to start for my mom so she can keep you all updated more easily on a central area of communication. So I am keeping this first blog fairly general so my mom can fill in the rest. Just let me say that I know she really appreciates all your thoughts and prayers while this is all sorted out. So feel free to forward this to anyone you want, and stay tuned for more detailed updates. Also feel free to enter the site and use it for any questions or comments. Thanks for all your love and support!
Love, Marc
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